Cofounder of the Millie Wright Children's Charity
Hi, it's Nige here, Millie’s dad.
I'm from a financial services background and, in addition to my role in this charity, I also volunteer as an Ambassador for a Leeds-based children's cancer charity.
Meeting families of seriously ill children on the wards has convinced me about the support gap we need to close. No one really understands how it feels to have a critically ill child until you are put in that position.
Phase 1 of our development is directed at fundraising to establish a solid foundation from which to deliver our full breadth of services. We already deliver some support to families located on Ward L50 but recognise that there is much more to do for these families and those supporting children with life threatening non-cancerous conditions located throughout the hospital and also those who attend haematology clinics.
I've experienced my own health challenges with chronic bowel disease necessitating removal of my colon and experience of living with an ileostomy, which was reversed after further surgery 25 years ago. I also live with coeliac disease, a lifelong condition affecting my remaining small intestine.