Co-founder of the Millie Wright Children's Charity
Hi, It's Nige here, Millie’s dad.
I'm co-founder, and a trustee/volunteer for The Millie Wright Children's Charity. I'm no different from anyone else involved in running the charity - no-one is paid, meaning that all funds and donations go directly into supporting families.
I balance my day-job in financial services with running the charity along with Ceri and bring experience of volunteering with other charitable organisations.
Meeting the families of seriously ill children in hospital wards over the past couple of years has served only to reinforce that there is a real need for family support that we must address. No one really understands how it feels to have a critically ill child until you are put in that position.
I've experienced my own health challenges with chronic bowel disease requiring removal of my colon and experience of living with an ileostomy, which was reversed after further surgery 25 years ago. I also live with coeliac disease, a lifelong condition affecting my remaining small intestine.
It's important to me that families (as well as patients) are supported. I'm proud of our early success in establishing a solid foundation from which to deliver an increasing breadth of services. Relationships are key, building these with other charities in the hospital and the fanastic nusring staff and managers is really important.