Story: In August 2022 Oakley became ill quite suddenly, passing blood with every bowel movement and screaming in pain. Oakley was transferred to Leeds Children’s Hospital for specialist care after his condition worsened. He spent 17 days receiving kidney dialysis and two blood transfusions to fight HUS syndrome.

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Diagnosis: Haemolytic Uremic Syndrome (“HUS”).

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When Diagnosed: 12th August 2022

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Treatment and Outcome: Oakley received kidney dialysis, two blood transfusions, folic acid and iron over several months. Oakley is now fully recovered and now a bouncing full of energy, 18month old, living and loving life.

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Support in our community: My family and friends are hosting charity nights to help charities such as The Millie Wright Children’s Charity who help parents like us going through difficult times.

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Lucy goes on to tell Oakley’s story in her own words…

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August 2022 began like any other month. But on 9th of August Oakley began to become ill, passing blood with every bowel movement. As a worried mum I took him straight to my local A&E and was sent to the Children's Ward where I was told it was a virus.

 

The next day (10th of August) Oakley became worse and screamed with every bowel movement and threw back up everything he ate or drank. I took him back to the Children's Ward at my local hospital where they tried to send me home. As a mother you know as your instincts kick in and we weren't going home.

 

On the 11th of August Oakley rapidly went downhill and began to swell. After bloods and digging we were told that our son's kidneys were failing as a result of HUS syndrome caused by E coli. Our world broke and we were told we had to transfer him for specialist care at Leeds Children’s Hospital.

 

On Friday the 12th of August we arrived on Ward L50 where we were greeted by the consultants who told us, “7 to 10 days, two weeks, a month, possible death…”, words you never want to hear as a parent.

 

After 17 days of dialysis and two blood transfusions Oakley fought HUS syndrome.

 

On the 2nd of September 2022 we were told the news that we were going home he was finally healthy enough to come home and be with his family. I was so relieved but upset at the same time as on Ward L50 we were treated like family. Everyone had different stories and we all supported one another.

 

Oakley is now fully recovered and a bouncing full of energy, 18 month old, living and loving life. We've been reassured that this can't happen again and he will now have antibodies against E coli.

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